Educación al Paciente

La misión central de la Neuron Clinic es proporcionar a los pacientes acceso a recursos esenciales de salud y educación para aprender más sobre las afecciones neurológicas. A continuación se presentan algunos recursos que pueden ayudar a los pacientes y cuidadores durante su viaje. No están solo, varias organizaciones ofrecen información y apoyo para una variedad de afecciones neurológicas.

  • Alzheimer’s Association

    The Alzheimer’s Association California Southland Chapter provides free educational programs, support services and care consultations across Los Angeles, Riverside, San Bernardino, Kern, Tulare, Kings and Inyo counties while also supporting critical research toward a cure.

    https://www.alz.org

  • Alzheimer's Disease Cooperative Study (ADCS)

    The Alzheimer’s Disease Cooperative Study (ADCS) was formed in 1991 as a cooperative agreement between the National Institute on Aging (NIA) and the University of California, San Diego. The ADCS is a major initiative for Alzheimer’s disease (AD) clinical studies in the Federal Government, addressing treatments for both cognitive and behavioral symptoms. The ADCS is part of the NIA Division of Neuroscience’s effort to facilitate the discovery, development and testing of new drugs for the treatment of AD and is part of the Alzheimer’s Disease Prevention Initiative as well.

    https://www.adcs.org

  • Lewy Body Dementia Association

    The Lewy Body Dementia Association (LBDA) is a 501(c)(3) nonprofit organization dedicated to raising awareness of the Lewy body dementias (LBD), supporting people with LBD, their families and caregivers and promoting scientific advances. The Association’s purposes are charitable, educational, and scientific.

    https://www.lbda.org

  • The Association for Frontotemporal Dementia

    AFTD’s mission is to improve the quality of life of people affected by Frontotemporal Degeneration (FTD) and drive research to a cure.

    https://www.theaftd.org

  • American Stroke Association

    Stroke is the No. 2 cause of death worldwide and a leading cause of disability. The American Stroke Association is a relentless force for a healthier world with fewer strokes. We team with millions of volunteers to prevent, treat and beat stroke by funding innovative research, fighting for stronger public health policies, and providing lifesaving tools and information.

    https://www.stroke.org

  • Brain Aneurysm Foundation

    The Brain Aneurysm Foundation was established in Boston in 1994 as a public charity. The foundation developed from a close relationship between patients and healthcare professionals who identified the need for comprehensive information and support for brain aneurysm patients, their families, and the medical community. The Brain Aneurysm Foundation is now the globally recognized leader in brain aneurysm awareness, education, support, advocacy, and research funding.

    https://bafound.org

  • Epilepsy Fundation

    The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

    https://www.epilepsy.com

  • Parkinson’s Foundation

    The Parkinson’s Foundation makes life better for people with Parkinson’s disease by improving care and advancing research toward a cure. In everything we do, we build on the energy, experience and passion of our global Parkinson’s community.

    https://www.parkinson.org

  • ALS Association

    ALS was first found in 1869 by French neurologist Jean-Martin Charcot, but it wasn’t until 1939 that Lou Gehrig brought national and international attention to the disease. Ending the career of one of the most beloved baseball players of all time, the disease is still most closely associated with his name. Amyotrophic lateral sclerosis (ALS) is a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord. Motor neurons reach from the brain to the spinal cord and from the spinal cord to the muscles throughout the body. The progressive degeneration of the motor neurons in ALS eventually leads to their death. When the motor neurons  die, the ability of the brain to initiate and control muscle movement is lost. With voluntary muscle action progressively affected, patients in the later stages of the disease may become totally paralyzed.

    http://www.alsa.org

  • The Foundation for Peripheral Neuropathy

    The Foundation for Peripheral Neuropathy is a public charity foundation committed to fostering collaboration among today’s most gifted and dedicated neuroscientists and physicians. These specialists from around the country will help us maintain a comprehensive view of the field and determine the research areas that hold the most promise in neuropathy research and treatment to develop new and effective therapies that can reverse, reduce and one day eliminate Peripheral Neuropathy. It is our ultimate goal to utilize every means and opportunity to dramatically improve the lives of those living with this painful and debilitating disorder.

    https://www.foundationforpn.org

  • National Multiple Sclerosis Society

    The National Multiple Sclerosis Society exists because there are people with MS. Our vision is a world free of MS.  Everything we do is focused so that people affected by MS can live their best lives as we stop MS in its tracks, restore what has been lost and end MS forever.

    https://www.nationalmssociety.org

  • American Migraine Foundation

    The American Migraine Foundation (AMF) is a non-profit organization dedicated to the advancement of research and awareness surrounding migraine, a disabling condition that impacts more than 37 million men, women and children in the United States. The AMF was founded in 2010 to provide global access to information and resources for individuals with migraine as well as their family and friends.

    Working alongside the American Headache Society, the AMF mission is to mobilize a community for patient support and advocacy, as well as drive and support impactful research that translates into treatment advances for patients with migraine and other disabling diseases that cause severe head pain.

    https://americanmigrainefoundation.org

  • San Diego Brain Injury Foundation

    The San Diego Brain Injury Foundation (SDBIF) was founded in 1983 as the preeminent resource for brain injury survivors in San Diego County, as well as their caregivers and their families, to provide information, support, education, and community awareness.  It is a non-profit organization under section 501(c)3 of the Internal Revenue Code.

    https://sdbif.org